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H pylori ruined my life

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UmarKhan
Posts: 3
Joined: Sun Oct 13, 2013 12:42 am

H pylori ruined my life

Post by UmarKhan » Sun Oct 13, 2013 1:12 am

Hi guys i m a patient of H pylori. My story is way too long but i would just try to make it short. I m 19 years old right now.
So it started 3 years ago i started to get too many sinus problems so what i actually had it was like too much mucus coming out of my nose and throat. So i went to my doctor she told me to do a bloodtest. In my bloodtest came out that i had a deficiency of vitamin b12 and d. After that i started to feel sick everyday. Everyday i had like flu and had no more energy. I went many times to a nose and throat specialist but they told me that there was nothing wrong with my nose and throat. I had to take vitamins but they didn't help either. I was feeling sick everyday. After some time my doctor gave me acid reducing drugs. I started taking it but still till now i have something coming up my throat it's like white which i think it actually is acid.
After that i went to a gastrologist. I had to do a endoscopy of my stomach. He saw it and said there was some sort of infection going on. So he also gave me a acid reducing medicine. But i didn't feel better and i had to go again. This time i was actually feeling more worse. I had constipation and diarrhea for 2 or 3 months so i thought it was not normal. I did an endoscopie again of my stomach and also of my large intestine in which i came out H pylori positive. My doctor gave me a heavy dose of thripple therapy for 10 days. i completed it with too much effort cause i started to have undigested food in my stool and i had no energy at all anymore. After few weeks i did a stooltest which again came out h pylori positive. My doctor gave me again a therapy of 5 medicines. I started to feel very good but still had diarrhea. Some of my symptoms like the too much mucus in throat and nose are completely gone which i had for 2 years :( but some symptoms sweating while it's cold, pain in the bones, lack of energy did went gone for a while but now they came back.i had to do a endoscopy again. My results will come on monday. But i still have diarrhea and a hell of a gas which forces me to go to the toilet after every 1 hour and also that undigested food in my stool. I m feeling like it will stay like this for the rest of my life. Sometimes i think it would never go away and i have to live with it.
Guys i would love to hear what u people would say about this. Thanks in advance. Any help will be appreciated.

Helico_scientist
Posts: 121
Joined: Tue Nov 08, 2011 10:55 am

Re: H pylori ruined my life

Post by Helico_scientist » Mon Oct 14, 2013 8:33 am

Hello,
I am really sorry to hear what's happening to you. It is, indeed very upsetting especially at your age. I thing there is several things going on with you. First I would take care about the H.pylori problem. If the bacteria hasn't been eradicated with the treatments you had, try to ask sensitivity testing on the bacteria. For this, they will need to take biopsy of your stomachs during the next endoscopy so they can culture the bacteria and check what it is sensitive to. The next treatment will then be personalised for you and you will have a better chance of eradicating H.pylori. Ask your gastroenterologist about this. Our therapy includes Rabeprazole (or any PPI), Bismuth, Rifabutin and Ciprofloxacin and has 95% success rate. One month after the treatment, do a breath test or stool test to check if you are eradicated from the bacteria. Don't forget that it will take a while for you to feel better after the treatment. Your stomach needs lots of time to recover. A good and healthy diet can help. If you are not feeling better, I would recommend a full check up. I know it must be difficult but stay positive. Seek advice from different doctors.
Good luck,

UmarKhan
Posts: 3
Joined: Sun Oct 13, 2013 12:42 am

Re: H pylori ruined my life

Post by UmarKhan » Sat Nov 02, 2013 12:41 am

Helico_apprentice wrote:Hello,
I am really sorry to hear what's happening to you. It is, indeed very upsetting especially at your age. I thing there is several things going on with you. First I would take care about the H.pylori problem. If the bacteria hasn't been eradicated with the treatments you had, try to ask sensitivity testing on the bacteria. For this, they will need to take biopsy of your stomachs during the next endoscopy so they can culture the bacteria and check what it is sensitive to. The next treatment will then be personalised for you and you will have a better chance of eradicating H.pylori. Ask your gastroenterologist about this. Our therapy includes Rabeprazole (or any PPI), Bismuth, Rifabutin and Ciprofloxacin and has 95% success rate. One month after the treatment, do a breath test or stool test to check if you are eradicated from the bacteria. Don't forget that it will take a while for you to feel better after the treatment. Your stomach needs lots of time to recover. A good and healthy diet can help. If you are not feeling better, I would recommend a full check up. I know it must be difficult but stay positive. Seek advice from different doctors.
Good luck,
I m really happy to see that someone replied, Thank you very much. And my doctors took biopsy in my last endoscopy which showed that H pylori is gone but this time i came positive for some parasites in my small intestine which is again really frustrating :( .I had to take Flagyl(Metronidazole) for 2 weeks which doesn't had a big effect but still it does have a small effect i don't have too much abdominal cramps now. But i m still having undigested food and extreme fatigue which makes me feel really bad. Now i have to stop with school because of this, i have no other choice .I can't go to school if i am that tired. I am gonna start taking rest and pray. I wouldn't even let my enemy get this infection. It ruines the whole life.

Helico_expert
Site Admin
Posts: 2827
Joined: Wed Mar 02, 2011 7:20 am

Re: H pylori ruined my life

Post by Helico_expert » Mon Nov 04, 2013 10:50 am

At least you found the parasites. Let's finish your antibiotics and then wait for a while to reconfirm the results. Keep us posted of your outcome.

ancote
Posts: 1
Joined: Wed Jun 22, 2016 6:50 pm

Re: H pylori ruined my life

Post by ancote » Wed Jun 22, 2016 7:05 pm

A friend of mine faced a similar situation. It all started with the mucus in throat and after 3 to 4 months, the doctor was like you are H Pylori positive. Really need to tell him out the solution provided. Reallly appreciate it. Thanks

kejkej628
Posts: 1
Joined: Thu Oct 11, 2018 8:01 pm

Re: H pylori ruined my life

Post by kejkej628 » Thu Oct 11, 2018 8:09 pm

Hi there,
I've read your post and I am really sorry for what you've gone through. Your situation however is fairly similar to the one I was in. Basically it all started with mucus coming down my throat, stuck nose and so on. After HP eradication it was better for a bit but not for good. That was in 2012 roughly. This year I finally found out I am gluten intolerant sufferer and nearly all the problems have gone away, especially bloating and indigestion and headaches. Since you mentioned you have some indigested bits leaving your bowels, think about an allergy. It could be gluten, milk or solely lactose. I hope this might be of help to you pal!

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