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Does anyone else have a sore tongue!!!

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Joolsamc
Posts: 1
Joined: Fri Sep 20, 2013 6:45 am

Does anyone else have a sore tongue!!!

Post by Joolsamc » Fri Sep 20, 2013 2:51 pm

Hi all! I don't normally participate in forums so hope I'm entering my query in the right place!
I just wanted to ask if anyone else suffers orally with H Pylori? I have such a sore tongue and mouth in fact these were the first symptoms that initially took me to the doctors back in April. My tongue feels like its on fire, its quite swollen, rather pale and grey in colour, cracking down the middle but raw at the tip. My taste buds have completely gone and everything appears sour or metallic! The doctor initially gave me antibiotics incase it was oral thrush (although looks nothing like the images I've seen for this on Google!) but they had no effect. After a few more weeks the burning seemed to spread from my mouth down my throat, chest, stomach and lower... Basically from my mouth to backside burns!! My stomach gurgles, i have periods of nausea and constant aching pain to right abdomen and back. My ears ring, muscles often feel twitchy and chest flutters through out the day. After another trip to the doctors a blood test showed up H Pylori and I had my 1 week of triple therapy. That was now 12 weeks ago and although I felt there was perhaps an initial improvement all symptoms have basically returned. The doctor says that its unlikely that the bug has come back so quickly but perhaps the antibiotics never eradicated it in the first place? And my biggest worry of all is that this is perhaps something more sinister as I've never felt so 'completely' unwell for such a long period of time. Can anyone else identify with this especially the mouth discomfort as that is making me miserable? Thank you in advance for any replies! X

bambamjr2013
Posts: 20
Joined: Wed Apr 17, 2013 11:35 pm

Re: Does anyone else have a sore tongue!!!

Post by bambamjr2013 » Fri Sep 20, 2013 11:30 pm

I know the feeling. My tongue is the same as yours. Stomach gurgles and makes me feel sick. I was told I was eradicated but sometimes I wonder. Neck is stiff and muscles are sore too. Just another thing after another. Keep your head up. God bless

Helico_expert
Posts: 2049
Joined: Wed Mar 02, 2011 7:20 am

Re: Does anyone else have a sore tongue!!!

Post by Helico_expert » Mon Sep 23, 2013 9:42 am

your "tongue" symptoms are not typical to H. pylori infection. However, you can always do a breath test to check if your H. pylori has been successfully eradicated.

JSVDVM
Posts: 10
Joined: Mon Oct 27, 2014 8:00 pm

Re: Does anyone else have a sore tongue!!!

Post by JSVDVM » Mon Oct 27, 2014 8:32 pm

Hey 'jools' ~ I was wondering how you are doing, and what the latest is with your situation!?

Were you eventually diagnosed with H-Pylori, or something else?

Like yourself, my damn tongue symptoms were the first to commence (depapillation, red, sore/burning, and these weird white/yellow blisters that come and go ~ all at the front of my tongue) ~ Myself, this has been going on for exactly 4 months now! I don't know whether it is a coincidence, but my tongue symptoms started when I had been on 'Gaviscon Advance' for one month. I stopped it as I thought it could be causing the tongue problems.

Just like yourself, 3.5 months after the tongue symptoms started, so past half a month I have developed the most crazy 'Tinnitus' in one ear. (This is what has eventually prompted me to message you).

Strangely a few times past few months I have coughed up 'Tonsil Stones', which is a new thing for me, alongside disgusting bad breath which my partner has commented on, not that he needs to, I can taste the foulness myself! Not worrying, but interesting as it is a few of many NEW symptoms I possess.

Unfortunately I seem to have developed some more full on strong symptoms, including Cardiac, like yourself (you mention flutters), and have become generally very unwell, and weak. Most of the time I feel like I am dying, and have completely lost my old life! (These terrible symptoms (too many to mention), started after I finished taking 'Lansoprazole', 30mg, which I took for 3 weeks. I stopped as my mouth felt like a Hamster cage! Now I am left with this terrible burning in my throat, too, which was not there before, (my acid reflux before taking PPI 'WAS' silent).

I have had a fully array of blood tests, some repeated, all are normal. (Although I did point out to my GP that my Folic Acid (B9) is only 'JUST' within range. And my B12 is in range, again, not that high though, and I understand that some levels of B12 in the blood can actually be inactive! So a normal range could be hiding an actual deficiency!

1 week ago I had a stool sample sent off for 'H-Pylori' infection ~ A strange thing to hope for, but I HOPE I get a positive result, because this seems to be the last thing.

Lastly, I was wondering what your sleep is like? I have developed the most maddening frequent night wakings which have been going on now since 20th September, so, feeling VERY drowsy during the day, taking me anything between 2-5 hours to get out of bed, dragging myself out. Normally I am out within 10 Minutes and I leap. And only sleeping 30 Minutes to 2 Hours at a time. So, all in all, MAJOR changes!

Looking forward to hearing from you, with how things are with you!

Take care :)

Helico_expert
Posts: 2049
Joined: Wed Mar 02, 2011 7:20 am

Re: Does anyone else have a sore tongue!!!

Post by Helico_expert » Tue Oct 28, 2014 8:34 am

not a bad thing to hope for. Your symptoms do sounds like H. pylori and I do hope that you are positive for H. pylori. At least we only know how to treat it, we are very good at treating it..

JSVDVM
Posts: 10
Joined: Mon Oct 27, 2014 8:00 pm

Re: Does anyone else have a sore tongue!!!

Post by JSVDVM » Thu Jan 15, 2015 10:24 am

Hey Helio_expert, we are chatting on my thread elsewhere:

The stool sample I mention above proved to be a false negative!

Thank goodness I BEGGED my GP for a referral to a Gastroenterologist!

One Endoscopy later, and finally, a positive result! :)

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