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Negative Tests but Symptoms Continue

Ulcers of the duodenum and stomach are called peptic ulcers. H.pylori causes most ulcers; other causes are aspirin and arthritis type drugs (NSAIDS). Ulcers can also be in the oesophagus but these are not caused by H.pylori.

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mytummyisaballoon
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Joined: Mon Mar 02, 2015 4:27 am

Negative Tests but Symptoms Continue

Post by mytummyisaballoon » Mon Mar 02, 2015 5:10 am

So I have been struggling with GI pain for awhile now. It peaked at the end of January and has since put me in emergent care twice. The things that i have had going on are as follows:
- Stomach pain (burning feeling at times and other times it feels like i am so hungry my stomach is going to growl but never does)
- changes in bowels (no shame at this point. Started as constipation that would suddenly switch to diarrhea, then it became chronic diarrhea, and now i am taking meds that have made it at least soft formed)
- cramping, bloating, gas
- stabbing pain in my right side under my ribs
- dizziness
- lightheaded
- heart palpitations
- head aches that don't ever go away
- anxiety r/t illness
- GERD when lying flat

I have been taking PPIs for about 35 days, pepto when I have stomach attacks, and percocet when the pain gets too intense. I have seen my GP and she felt it was anxiety, but still gave me a blood test for H pylori (negative and still sent the referral to a GI specialist. When I saw the GI dr he set up a colonoscopy and endoscopy. After the procedures, he said my stomach looked good so he didn't even do a biopsy for testing of H pylori and that my colon looked healthy. I am still having ALL the symptoms. ALL the pain. ALL the trouble.

Could i have a false negative?
Is there a test that is more definitive?
Does this even sound like H pylori?
Could i just be sick or have IBS?
Could this be something like Candida or something else?

I am hoping that SOMEONE might be able to give me some information from their experience.

Helico_expert
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Re: Negative Tests but Symptoms Continue

Post by Helico_expert » Tue Mar 03, 2015 7:13 am

We only concern on the false positive of H. pylori from Blood test. It's normally very sensitive. Once you are infected with H. pylori, your blood test can show positive for years. Hence, the worry of false positive. As for your case, since Blood test showed that you are negative of H. pylori; plus you had endoscopy that showed you had a healthy stomach linings; I think the chance of false negative diagnostic is low.

We know mental stress can definitely give you some bowel movement. I know a couple of people who is free of H. pylori and they always run into toilet when they are stressed. eg. giving speech, being the center of attention, constant worrying, strong anxiety and so on.

So what can you do with your IBD-like symptoms?
You probably need to investigate in your dietary. See a dietitian.
Look for an immunologist to test you for food allergies.
discuss your problem with a gastroenterologist about fecal transplant.

michaeljonson
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Location: Texas

Re: Negative Tests but Symptoms Continue

Post by michaeljonson » Mon Feb 22, 2016 5:12 am

I agree with Helico_expert. The condition can be caused due to stress and anxiety as well. You must consider second opinion from a specialist.

kookaburra
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Joined: Wed Jul 01, 2015 2:26 am

Re: Negative Tests but Symptoms Continue

Post by kookaburra » Wed Sep 21, 2016 3:20 am

Hi,

Your symptoms sound a bit like Coeliac disease and lactose intolerance. I still suffer with both but am managing fairly well.

Have you found some relief with a specialist?

An FMA (Faecal Microbial Analysis) test can be done by Bioscreen Australia. It is more expensive that the general stool screening done via the public hospital/Medicare system. But the results and recommendations are more detailed. It's worth the money to know how to deal with the diagnostics and symptoms.

shid0x
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Joined: Wed Sep 02, 2015 9:38 pm

Re: Negative Tests but Symptoms Continue

Post by shid0x » Fri Sep 23, 2016 12:59 am

Best course of action imo woudld be for you to continue and get tested ( allergies, celiac, pancreas, ect...)

While getting some mental rest, ask your doctor for something like xanax ( stress and anxiety can cause everything you listed, trust me I KNOW )
Also i might suggest you to see an osteopath ( Anxiety, headhache, lightheaded, dizziness are usual symptoms of cervical problem or nerves, an osteopath will easy get you back on track )

Stay safe, trust your doctors.

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