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Ccbloom
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New!

Post by Ccbloom » Sat Feb 18, 2017 6:54 pm

Hi everyone. This is my first post. Be gentle with me, I have quite severe health anxiety so even a little mention of something sinister will send me into a panic, I know that's a big ask but I thought I should forewarn! :D

I was diagnosed with h-pylori in September 2016 and took the week's eradication therapy (Amox, Mertron, Omep). Due to side effects (+ health anxiety) there was slight non-compliance, I maybe missed 3 doses of Metronidazole, tried to even it out at the end of the course but I realise I then wouldn't have had the constant supply in my body for the week.

I had gastritis like symptoms for about a month following then about 3 blissful symptom-free months before I started getting episodic reflux and constipation again. I now have an odd pain to the left at the bottom of my ribs which I am convinced is an ulcer.

I have been back to my GP twice. Firstly given Gaviscon which did nothing except give me trapped wind so painful that it would send you to A&E. Second time I insisted on a repeat test but the GP said the 'treatment is so effective' and it's probably gastritis. She prescribed me 300mg Ranitidine for a month.

I find some symptoms I had before treatment are absent now, but I have equally bothersome ones to replace it. Again, like before it's seems to be episodic.

How do I get a repeat test if my GP won't do it? Secondly, excuse my ignorance, but have all people with h-pylori with symptoms developed an ulcer? My main fear is having an ulcer that is bleeding although I have no symptoms to suggest this. I read some things that people have had an ulcer for years but it has never bled - can someone explain the process to me please?

Thank you so much!

Helico_expert
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Joined: Tue Mar 01, 2011 11:20 pm

Re: New!

Post by Helico_expert » Sun Feb 19, 2017 2:07 pm

I'll try to be as gentle as possible.

Not everyone with H. pylori will develop ulcer. In fact, only 10 percent of those that are infected will get it.

I think it is important to have a retest. Otherwise, you'll never know if you are truly cured. So, go to visit another GP is your best option. breath test is a very simple test and any GP will be able to help you.

I must remind you that blood test is not useful in your situation. Because blood test can only tell you history of infection and cannot tell you your current infection status. People who had H. pylori before, the blood test will remain positive for 3 years.

hopefully your retest will be a negative result and you are on your way to recovery.

PS: if you are really worried, you can always visit a specialist for endoscopy.

Ccbloom
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Joined: Sat Feb 18, 2017 6:35 pm

Re: New!

Post by Ccbloom » Sun Feb 19, 2017 2:40 pm

Hi helico expert and thanks so much for your reply, it's reassuring to know that not everyone gets an ulcer, although of course that doesn't mean I am not one of them, it's something to be hopeful about.

Even the thought of endoscopy terrifies me! I am in the UK and cannot afford private health care, so it seems it will be me against the GP to get a repeat test.

I had another question - I have never in my life had a sickness/diarrhoea bug, despite being around other family members with them etc. I was reading about some doctors believing that h pylori bacteria can actually be beneficial in young children, and it got me thinking that it might be the cause of me never having an infection like that, which I thought would be quite interesting?

Also, I tend to get palpitations after I eat and have had for quite some time now. The doctor is not worried about my heart as I have had tests on that too. Could this be due to the h pylori?

Helico_expert
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Re: New!

Post by Helico_expert » Mon Feb 20, 2017 12:13 am

H. pylori evade immune system by "taming" our immune cells. Some scientists shown that the "taming" process helps children from developing allergies, especially asthma. Some scientists even suggest that People infected with H. pylori during childhood have less chance of developing immune diseases.

in regards to your palpitations, i dont think is because of H. pylori. more likely due to anxiety. On another hand, H. pylori could have triggered your anxiety which then lead to palpitation.

Ccbloom
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Re: New!

Post by Ccbloom » Mon Feb 20, 2017 9:23 am

That's very interesting - I have never had allergies despite being the perfect candidate! I did have auto immune Hashimoto's after pregnancy although this did remit.

Yes, anxiety seems to answer for a lot of what I experience. I had read about palpitations following meals being a link to your vagus nerve, which I suppose ties in with anxious digestion.

Are there any links here on how to gain weight again safely after h pylori? I lost quite a bit.

Thank you.

Helico_expert
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Posts: 2461
Joined: Tue Mar 01, 2011 11:20 pm

Re: New!

Post by Helico_expert » Mon Feb 20, 2017 4:00 pm

usually after eradication of H. pylori, the stomach would recover and the appetite will become better.
:)

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